LET'S ALL GET BEHIND THIS

[CITYSLICKER]

WILL DO PAPA

[CITYSLICKER]

We went over and Sean's mama shaved his head to put the optune hat back on his head, she noticed some swelling in his jaw and back of neck, will have to call the dr tomorrow about this. He had a fair day and should have plumber to fix the plumbing problem maybe tomorrow. Craig Mims texted me and they had the Berkeley stags hall of fame golf tournament and had a donation cup for Sean, I went by and got the donations, thanks to all that took the time to show a little love to our son. Once again, the love is alive in the Corner for sure. we are hoping the swelling can be taken care of with some steroids and it goes down in the next few days. I appreciate.
A Wing And A Prayer
© Michelle Butler
Published: July 2013
Under the wing of an angel, we feel protected.
Through prayers to God, we feel connected.
Peace is said to be offered on the wings of a dove.
Prayers can bring peace along with hope, faith, and love.
Wings of a jet plane provide a steady flight.
I pray you remain steady and strong through this fight.
Butterflies have wings to fly playfully free,
And free from this monster is what I pray you'll soon be.
Birds spread their wings as they may leave their nest.
We're spreading our prayers that you'll always be blessed.
Go fight and win this battle you didn't start.
On the wings of an angel and prayers from our heart

[CITYSLICKER]

Ruth Ott
htSpons1ot2rhaehd ·
4/26/21- William Sean Ott
- update
The last update on Sean was 4/13/21, almost 2 weeks ago. Three days after his MRI, the results, and new treatment procedures, Melanie removed Sean's Optune cap. Sadly we found a 3rd degree burn caused by 3 of the electrode discs (1 row.) Sean never felt the discs burning. All the discs create some heat, but he never felt the heat that would cause that damage. It took 9 days to heal. Sean lost 9 days of that treatment. The cap went back on yesterday afternoon.
These past 2 weeks. I have been more reflective. I have researched for additional equipment and exercise to help Sean's hand, leg and foot. The leg and foot have progress very little; the hand has regressed. He still expediences exhaustion and difficulty sleeping at night. At times the depression and anxiety are less. I am thankful for those days that I do not see my son cry.
So many things still happen to a family. All those family problems do not go away because there is cancer of a father, a husband, a son and a brother. There are always other stresses that make dealing harder.
Please continue to pray for us.

[CITYSLICKER]

well, another week passes, we still have our Sean here and the spirit of fighting to keep him here is a bit battered after a week of progress slowing and him falling once and hurting his knees. fighting a leaking new toilet and many moments of pain and a little gain. I can say without a doubt that Mr cancer, you still have the fight of your life, we will not let you weaken his strength and resolve to live and thrive again. When I left him, he was tired but eating a hamburger and donuts. We will be there and make sure he has hope and prayers from the whole Facebook family and many groups to keep this journey to find a way, never give up, never. we shall not give him to you, you wicked mind stealer. yes he is still walking and talking and full of life. So thank you our extended family for the backup to keep us positive and as Jen says one baby step and then another. To all the cancer doctors that never give hope, may you all be in this same seat and be on the cancer persons side. yall talk death like its nothing, you give no hope, no feelings, and see nothing to death. Hardened hearts shall all soften in each ones life sooner or later. thank y'all all for our support groups, we shall never stop trying and praying, and hoping, My dreams are always bad now. going on 5 months of hell on earth, just wanting to make our baby better.

[Penguin]

Slick, we all feel your frustration. We are behind you 100%. If we could do something, I dare say everyone on this site would fight to be the first in line. Where there is hope, there is a chance.

I ask you as a friend, please do not blame those charged with Sean's care, for his situation. They are responsible for trying to find ways to help him, not ways to hurt him, or your family. It has been my experience with doctors who treat patients with critical illnesses, that what you are perceiving as cold an uncaring, is their way of trying to make sure that you all understand the gravity of the situation, and the most likely outcome. Doctors deal in tried and true percentages. They do not deal with hope.

We, you, me, and everyone else on the patient side of medicine, always hold out for hope. We want to be the ones to defy the odds. And as long as we hold onto that hope, we are trying to convince ourselves that this time things will be different. And any times, they will be. Many people defy the odds. More so than any doctor cares to admit. Sean deserves to be one of those.

The doctors had my mother dead at least 10 times before she passed away. Each time, I would just shake my head at them and think to myself that my mother was to stubborn to die. I understand that doctor's messages can come off as cold and uncaring. But they will work as hard as they can to make sure that Sean has the absolute best chance possible, to beat that beast. Please do not think that I am trying to make you mad. I am sure that you have more than enough reasons to be upset by the situation. What I am suggesting to you, is to try and help those doctors do their very best to give Sean at least a fighting chance. You managed to beat the beast, help Sean do the same. Give Ms. Ruth a big hug for me. I read her words and just cry. She is hurting really bad. And I know that you are as well. Stand strong for those who need you most. I consider you to be my good friend. If there was a way for me to take away your pain, I would do so without even asking. Tell Sean that he has an awful lot of people all over this state pulling for him. We are here to prop him up when he can't manage on his own. Peace to your entire family.

[CITYSLICKER]

Thanks pinky there are some that deserves the doctor sucks thing, I love you and I feel like I am losing my son a little more everyday, i try everyday to make chikin salad out of this cancer chit. It just don't work some days for me. love you brother. we just roll with the best we can do at times.

[CITYSLICKER]

[DeCav]

SLICK,

I believe it is a good thing that you are doing with this thread and I would encourage you to lean into it if it's even possible to do so.

Let is all hang out and share your experiences as much as possible.

I've said for many years that the football boards are a personal journal for me. A place where I feel accepted and validated and as such can share deeply personal feelings that I dare not share to the world. My hope is that for better or for worse, this thread if preserved, could be a link for a father or mother in the future whose child is diagnosed with a terminal disease. I think we all would love to aspire to be the example...the archetype....of the good father who has to suffer disease visited upon his child and his community who gathers round to give not good support, but the best support.

I want to say to all the members of the board following this thread but haven't posted yet...

Thank you for following. You could turn the page but you didn't.

Words matter. We found that out recently. Again, it would be nice for this thread to be the link that every parent receives inspiration from and shares with people in similar situations.

It's an impressive number if you look at the number of pages. Let's get an impressive number of contributors.

Hmmm....

Being in another wave of depression myself, it occurs to me to mitigate that with an effort to provide meaning to my life in some way that succeeds in offsetting my own faults.

Billy,
Plans tomorrow?

[CITYSLICKER]

my plans everyday is to think, to smile and to cry and to help my son to believe he can beat this horrible cancer that has affected him whether I believe it or not. My life is a bubble of trouble and I appreciate every day I can do something to make my son comfortable in his nightmare and maybe a glimmer of a smile or him say I feel a little better, daddy. not any of his tears, and his fears, we,my wife and I have plenty to keep anyone's eyes clean, and more fears we are losing him, a sad slow death where you can see it every day, baby steps as they say and nothing can stop the beast, Love you vamp, more than you will ever know. peace, my friend. A side note to another constant stressor is trying to constantly balance the wishes of his wife verses what we, mama and daddy, see as the correct things to do for him, its already blew up a few times and that's slippy path, you have to tip toe throught every day too. any one that wants to help can easily find his donation places on facebook or just send it to me at Billy Ott, 118 Gibson Street, Moncks Corner, sc 29461, send a check to either me or Sean Ott and thanks for a place to share this terrible trip.

[CITYSLICKER]

Vamp, something else is happening to me, I thought I would share with you, this is not made up, it started maybe 2 months ago or longer. I sleep on the couch not in in a bed, I have cat eyes and they quickly change as the lights go out and the street lights and window lights come into my eyes focus, it was just a swirling on the ceiling and i would try harder to see it. it was like a spirit moving around the ceiling and me watching, it did it for maybe a few days and disappeared. then one early morning I felt a presence watching me, I looked and a dark figure was there and slowly it has went from there to hands reaching out to me and bumps to my back laying on the couch. and it still comes or they come, I awoke one morning and it reached for my cell phone, I flapped my hands and of course nothing, then I woke up recently and I could see an old woman as clear as day looking at me, so one lunged at me and woke me, of course I get startled by the the movements, not sure whats the purpose but the wife said I needed a go to Jesus talk to a rev. It is almost every night, I don't understand if its my mind or something else, so not sure where this is going to end too, but sleep is never very heavy for me, hahaha.